Parents of kids with Niemann Pick C advocate for adrabetadex

Parents of children with Niemann Pick Type C, NPC, hope a company is willing to manufacture adrabetadex, which they say helps their kids.

Jill Beirl – NNPDF

Community News – NNPDF

Parents Receive News That Their Child's Niemann-Pick Disease Medication Will be Discontinued - Patient Worthy

Families plead with FDA for drug to treat Niemann-Pick Disease Type C

APMRF Fall Newsletter by parseghianfund - Issuu

Parents of kids with Niemann Pick C advocate for adrabetadex

Parents of kids with Niemann Pick C advocate for adrabetadex

About NPC - Firefly Fund

Valley baby showing great progress with experimental Niemann-Pick Type C disease drug treatments

Belle & Abby's Story - Firefly Fund

APMRF Fall Newsletter by parseghianfund - Issuu

Brave Like Emma